What is FPIES?

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response, a Non-IgE Food Allergy in which food is considered a foreign invader and the body fights, or attacks it, until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These symptoms can quickly lead to: lethargy, low body temperature, low blood pressure and in severe cases, sepsis-like shock. And still yet, many parents report children also experiencing many discomforting symptoms while the body fights this reaction and these can include: extreme stomach pains, excessive gas, runny stools with or without mucus/blood, acid reflux, rashes/eczema, sleep disturbance, and agitation/inconsolable crying.

FPIES is a clinical diagnosis (based on symptoms and history) there is currently no test for it.

This is my definition of FPIES, defined by my own research in: medical journal articles, other families living through FPIES I 'meet' on the support groups and, of course, my own son. You can learn more about my research in FPIES here on this blog, and at The FPIES Foundation website.

Saturday, May 14, 2011

Food Allergy Awareness week 2011

We are nearing the end of Food Allergy Awareness week.   I have been taking some time to raise awareness on Non-IgE Food Allergy.   Non-IgE involves the immune system but in a different way then typical (IgE) allergy.  The effects are not as immediate but can be just as serious.   

I have become involved in a foundation for Protein Intolerant Children (PIC).  Our website is located here: The PIC Foundation where "Our mission is to improve the lives of protein intolerant children and their families by providing information, resources, support forums, and by promoting public awareness and supporting medical research."  We also have a facebook page, to utilize the social media to help raise awareness and support for families and can be found here: PIC Facebook page where you will find the article our foundation wrote, and are utilizing to raise awareness on Non-IgE Food Allergy.  Help us raise awareness and share the information!  Medical journal article references are listed if more information is needed (for yourself or your doctor).  
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  1. AnonymousMay 26, 2011 at 9:47 PM

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