What is FPIES?

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response, a Non-IgE Food Allergy in which food is considered a foreign invader and the body fights, or attacks it, until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These symptoms can quickly lead to: lethargy, low body temperature, low blood pressure and in severe cases, sepsis-like shock. And still yet, many parents report children also experiencing many discomforting symptoms while the body fights this reaction and these can include: extreme stomach pains, excessive gas, runny stools with or without mucus/blood, acid reflux, rashes/eczema, sleep disturbance, and agitation/inconsolable crying.

FPIES is a clinical diagnosis (based on symptoms and history) there is currently no test for it.

This is my definition of FPIES, defined by my own research in: medical journal articles, other families living through FPIES I 'meet' on the support groups and, of course, my own son. You can learn more about my research in FPIES here on this blog, and at The FPIES Foundation website.

Friday, May 27, 2011

Daily Recommended Intakes

Having a child with multiple food allergies is challenging in many ways. One of the large tasks of food allergy is to ensure proper nutrition while removing an entire line of food, sometimes a whole food family.   If there can be a food that replaces the allergenic food that has been removed, nutrients can be filled in.  If there is no replacement, you can risk a nutritional deficiency.   Having a Registered Dietitian help analyze the diet for nutritional adequacy is very helpful and reassuring.   But in between dietitian visits, or in the absence of one, there are online resources that can be a guidance. One useful one is this one from the USDA.

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