The FPIES Foundation is here!
"The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.... [It] is the collaborative effort of several FPIES families whose relentless journey has sparked the desire to help other families find their way. The FPIES Foundation strives to provide a credible and interactive support resource for this rare, oftentimes isolating diagnosis".
My entries on this blog have slowed down, in part due to my work as one of these families. I am among the founding families of The FPIES
The launch is official this week (refer to the press release on the website for details). And, personally, I am so proud of what we have accomplished thus far, and we have so much more - so many more programs being developed to assist families and the medical community, to provide much needed support, and education. We will be updating frequently, so check back often!
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