What is FPIES?

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response, a Non-IgE Food Allergy in which food is considered a foreign invader and the body fights, or attacks it, until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These symptoms can quickly lead to: lethargy, low body temperature, low blood pressure and in severe cases, sepsis-like shock. And still yet, many parents report children also experiencing many discomforting symptoms while the body fights this reaction and these can include: extreme stomach pains, excessive gas, runny stools with or without mucus/blood, acid reflux, rashes/eczema, sleep disturbance, and agitation/inconsolable crying.

FPIES is a clinical diagnosis (based on symptoms and history) there is currently no test for it.

This is my definition of FPIES, defined by my own research in: medical journal articles, other families living through FPIES I 'meet' on the support groups and, of course, my own son. You can learn more about my research in FPIES here on this blog, and at The FPIES Foundation website.

Friday, September 2, 2011

The FPIES Foundation

The FPIES Foundation is here!

"The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.... [It] is the collaborative effort of several FPIES families whose relentless journey has sparked the desire to help other families find their way. The FPIES Foundation strives to provide a credible and interactive support resource for this rare, oftentimes isolating diagnosis".

My entries on this blog have slowed down, in part due to my work as one of these families.  I am among the founding families of  The FPIES

The launch is official this week (refer to the press release on the website for details).  And, personally, I am so proud of what we have accomplished thus far, and we have so much more - so many more programs being developed to assist families and the medical community, to provide much needed support, and education.  We will be updating frequently, so check back often! 
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