What is FPIES?

FPIES is a severe delayed food allergy of the gut, it is understood to be a T-cell mediated response, a Non-IgE Food Allergy in which food is considered a foreign invader and the body fights, or attacks it, until it can violently expel it; although the exact mechanisms are still not well understood.

Symptoms include: profound vomiting (often to bile), diarrhea and/or constipation. These symptoms can quickly lead to: lethargy, low body temperature, low blood pressure and in severe cases, sepsis-like shock. And still yet, many parents report children also experiencing many discomforting symptoms while the body fights this reaction and these can include: extreme stomach pains, excessive gas, runny stools with or without mucus/blood, acid reflux, rashes/eczema, sleep disturbance, and agitation/inconsolable crying.

FPIES is a clinical diagnosis (based on symptoms and history) there is currently no test for it.

This is my definition of FPIES, defined by my own research in: medical journal articles, other families living through FPIES I 'meet' on the support groups and, of course, my own son. You can learn more about my research in FPIES here on this blog, and at The FPIES Foundation website.

Thursday, June 16, 2011

Food and Symptom Logs & Journals

Journals/logs are an important tool for the delayed reactions of Non-IgE Allergy.

Journals have been incredibly helpful.   The logging can be tedious but it is very reflective- which is incredibly helpful for seeing larger patterns to the chronic nature of FPIES.  It is particularly helpful, almost critical, to do them during food trials.  

Here are some examples of ones I have used:


Date:

12am
1am
2am
3am
4am
5am
6am
7am
8am
9am
10am
11am
Formula:













Probiotic:













Food:














Diapers:













Reactions:

















Notes:











 DAY
TIME
Food/Formula/Med
Reaction:
Notes:

2am
8oz.



3:30am
7oz.



6:30am
4oz.



8:30am








Date
Food Trial
Med/
Probiotic
Formula
Total oz.
Calories
Reactions
Notes



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1 comment:

  1. LizJuly 14, 2011 at 10:10 AM

    This is a great log! I've stopped logging lately because I've gotten lazy, but I think you've inspired me to start again!

    ReplyDelete

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